Seizure diaries for clinical research and practice: limitations and future prospects

…, JD Hixson, R Moss, ST Herman, BE Fureman… - Epilepsy & Behavior, 2012 - Elsevier
PURPOSE: An NINDS-sponsored conference in April of 2011 reviewed issues in epilepsy
clinical trials. One goal was to clarify new electronic methods for recording seizure information …

SCN8A encephalopathy: Research progress and prospects

MH Meisler, G Helman, MF Hammer, BE Fureman… - …, 2016 - Wiley Online Library
On April 21, 2015, the first SCN 8A Encephalopathy Research Group convened in Washington,
DC , to assess current research into clinical and pathogenic features of the disorder and …

Common data elements in epilepsy research: development and implementation of the NINDS epilepsy CDE project

…, DH Lowenstein, NM Barbaro, BE Fureman… - …, 2011 - Wiley Online Library
The Common Data Element (CDE) Project was initiated in 2006 by the National Institute of
Neurological Disorders and Stroke (NINDS) to develop standards for performing funded …

Advances and future directions for tuberous sclerosis complex research: recommendations from the 2015 strategic planning conference

…, EM Bebin, PB Crino, D Franz, BE Fureman… - Pediatric …, 2016 - Elsevier
On March 10 to March 12, 2015, the National Institute of Neurological Disorders and Stroke
and the Tuberous Sclerosis Alliance sponsored a workshop in Bethesda, Maryland, to …

Seizure forecasting from idea to reality. Outcomes of the my seizure gauge epilepsy innovation institute workshop

…, JA French, C Bernard, GA Worrell, BE Fureman - Eneuro, 2017 - eneuro.org
The Epilepsy Innovation Institute (Ei 2 ) is a new research program of the Epilepsy Foundation
designed to be an innovation incubator for epilepsy. Ei 2 research areas are selected …

Patient and caregiver preferences for the potential benefits and risks of a seizure forecasting device: a best–worst scaling

…, SB Dumanis, T Huwig, S Hyman, BE Fureman… - Epilepsy & Behavior, 2019 - Elsevier
Background Epilepsy is the 4th most common neurological disorder and is characterized by
recurrent, unpredictable seizures. The ability to forecast seizures is a significant unmet need …

Triggers of paroxysmal dyskinesia in the calcium channel mouse mutant tottering

BE Fureman, HA Jinnah, EJ Hess - Pharmacology Biochemistry and …, 2002 - Elsevier
Mutations in ion channels, or channelopathies, often lead to neurological disorders in which
normal behavior is interrupted by attacks of debilitating symptoms such as pain, weakness …

Accuracy of ICD-10-CM claims-based definitions for epilepsy and seizure type

JR Smith, FJS Jones, BE Fureman, JR Buchhalter… - Epilepsy research, 2020 - Elsevier
Objective To evaluate the accuracy of ICD-10-CM claims-based definitions for epilepsy and
classifying seizure types in the outpatient setting. Methods We reviewed electronic health …

Long-term outcomes of generalized tonic-clonic seizures in a childhood absence epilepsy trial

…, E Dorsey, N Drummond, S Evans, BE Fureman… - Neurology, 2015 - AAN Enterprises
Objective: To determine incidence and early predictors of generalized tonic-clonic seizures (GTCs)
in children with childhood absence epilepsy (CAE). Methods: Occurrence of GTCs …

Establishing a learning healthcare system to improve health outcomes for people with epilepsy

…, LMVR Moura, JR Buchhalter, BE Fureman - Epilepsy & Behavior, 2021 - Elsevier
Objective To describe the organization of the Epilepsy Learning Healthcare System (ELHS),
a network that aims to improve care outcomes for people with epilepsy (PWE). Materials and …